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Tia Nelis was a founding member of People First of Illinois and the national organization, Self Advocates Becoming Empowered (SABE). She has held various elected offices, including chair of SABE from 1997 to 1999. She was one of the first self-advocates hired by a University Center for Excellence in Developmental Disabilities (Institute on Disability and Human Development at the University of Illinois at Chicago). She has led projects on aging with developmental disabilities, self determination, and leadership.

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